Small Steps - Seize the Day

A charity raising awareness of epilepsy and supporting families who have babies and toddlers with this condition.

Small Steps


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Joined Jul 10 2011
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FEMALE
41 years old
Co. Durham, United Kingdom
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Small Steps - Seize the Day

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1 Comment

Reply Anna Whitehurst
4:12 PM on July 25, 2011 
Hi Jude,
Sarah has just sent an e-mail with the link to this web-page. Ava's journey sounds like a rollercoster, and I have no idea how you get through each day - Michael and I both send our love and respect.

It suddenly occured to me that there is a little girl in Congleton where we live called Ruby, and from what I believe she also has a form of epilepsy as well as other health issues. Her parents have set up a charity and hold a variety of fundraising events for a sensory room - the link is www.rubysfund.co.uk
Don't know if it is of any use to you, but you may be able to get in contact and get some ideas for raising money. Ruby is often in our local newspaper, which is the only reason I know about her, so I'm afraid I don't know her family myself or else I would help directly.

Love Anna x