Small Steps - Seize the Day

A charity raising awareness of epilepsy and supporting families who have babies and toddlers with this condition.

News

view:  full / summary

KIDS launches a new site

Posted by Small Steps on September 29, 2014 at 12:45 PM Comments comments (7)

Today KIDS launches a new suite of resources to support families and carers of disabled children and young people to help them navigate the reforms to Special Educational Needs and Disability provision.

The full suite of resources is available to view on the KIDS website: www.kids.org.uk/mip2

KIDS works with disabled children, young people and their families. As part of the ‘Making it Personal:2’ project, sponsored by the Department for Education, KIDS has worked with a number of partners to develop a new suite of resources to explore how personal budgets and the local offer will benefit families.

This comprehensive suite aims to reach a range of audiences to help them understand how they can use the new system to their advantage and provide a holistic service to families and carers. KIDS worked in partnership with the Office for Public Management (OPM), In Control, the National Association of Family Information Services (NAFIS) and the Family and Childcare Trust to produce these resources as well as a number of local voluntary and statutory providers, groups of parents, carers, disabled children and young people.

The suite includes:

· Guidance for providers on how to become personal budget ready through downloadable resources and an eLearning suite.

· Refreshed and extended guidance and eLearning modules on personal budgets and direct payments for families.

· Refreshed and extended guidance for commissioners on how they can work across health, education and social care to support families.

· Guidance for Family Information Services to ensure that they are equipped to support families by identifying the range of services available to them under the local offer.

Children and Families Minister Edward Timpson said:

“I’m proud we’ve sponsored these fantastic resources which will complement our SEND reforms.

“Children, young people and their families will now be at the centre of a more simple, joined-up system that provides the support they deserve.

“We’re committed to helping families get the best information possible about the new system that will help children and young people with SEND from birth to 25.”

Regional events to support this will be taking place from October 2014 to March 2015.

For more information on these please email coe@kids.org.uk

If you want to find out more about the ’Making it Personal:2’ project, you can find more information here: http://www.kids.org.uk/mip2

MHRA: Antiepileptic drugs: changing between different manufacturers products

Posted by Debbie Simpson on May 10, 2014 at 7:00 PM Comments comments (0)

We would like to make parents aware of the following letter that has been recently issued by the MHRA, who regulate medicines and medical devices in the UK (click on the underlined text to view).


http://www.mhra.gov.uk/home/groups/comms-ic/documents/websiteresources/con335046.pdf


The letter states that for many people it is safe to switch from one manufacturer of their antiepileptic drugs to another. However with some particular types of antiepileptics doctors and pharmacists should now advise that they are always produced by the same manufacturer. This is primarily to ensure that the change does not effect seizure control or increase the risk of side effects.


The letter states, and Small Steps - Seize the Day also stress, that you should not make any changes, or stop taking your medication without discussing it with your doctor.

Epilepsy Action Newcastle Event Sat 26th Oct

Posted by Small Steps on September 20, 2013 at 4:35 AM Comments comments (0)

Find out more about treatment options at our Newcastle event - Saturday 26 October 2013 11.00am-3.30pm

Epilepsy Action are holding a series of events across England and Wales. They will give people with epilepsy, their families, friends and carers, the opportunities to find out more about different treatment options for difficult to control seizures.

· Book your place now

 

Sessions at the event will include:

Surgery for epilepsy

Vagus nerve stimulation (VNS)

Ketogenic diet as a treatment for children with epilepsy

Stress management

Personal experience of using VNS

Each event will have presentations from medical staff and Epilepsy Action staff. Volunteers will be present providing information for people to take away with them.

Venue

The Beacon,

Westgate Road,

Newcastle upon Tyne,

NE4 9PQ

The event can be booked online, or by telephoning Local Services on 0113 210 8800. There is a cost of £6 delegate rate or £4 concession rate.

We hope you will be able to attend.

 

Support from Local Company

Posted by Debbie Simpson on September 18, 2013 at 4:10 PM Comments comments (0)

We are very pleased to say that Small Steps - Seize the Day have just been announced as Komatsu UK's nominated charity for the next 12 months. Komatsu is multinational company that makes excavators, with its UK base in Birtley, Co Durham. We're really looking forward to working with them.

 

Big Thank You!

Posted by Debbie Simpson on September 18, 2013 at 4:10 PM Comments comments (0)

A massive THANK YOU to Unison who have just donated £1000 to us!

2nd Annual Fundraising Ball

Posted by Debbie Simpson on September 30, 2012 at 3:50 PM Comments comments (0)

Our second annual fundraising ball was held at the Ramside Hall Hotel on Saturday 22nd September. The evening was a great success, raising £3120.50 for the charity.

Raffle Prize Winners were as follows:

B&B at White Hart Hotel in Harrogate 1135 Suzanne Jones

Chicky Boo Babies 100e voucher 1761 Gary D

Sarah Loveland Photo Package 752 Jean

Paintballing and Comedy Club for 8 354 P Johnson

Gucci Purse 560 M Martin

Purple Basket of Goods 1091 Lynda Allan

Years Subscription to Living North 774 Stephen Breen

Jamie Oliver Steamer 335 Peggy Carr

Fenn Wright Mason Handbag 317 Lyn Vincent

Electric Toothbrush 1166 Julie

Large Candle 1735 Dawn Redmond

Spaceform Glass Frame 1405 Kate Runciman

Candle in Jar 1138 Christine

George Forman Grill 439 Mary Trouman

Quality Street 055 M D Davison

 

 

 

Guide for Fathers of a Disabled Child

Posted by Debbie Simpson on August 25, 2012 at 8:45 AM Comments comments (0)

Contact a Family charity have just produced a guide for Fathers of a Disabled Child. Full of useful information and tips it's definitely worth a look. http://www.cafamily.org.uk/media/455774/fatherscurrentlastupdated_august.pdf

Webstore now active

Posted by Debbie Simpson on August 8, 2012 at 3:55 PM Comments comments (0)

Our webstore page is now active and can be used to buy tickets for the forthcoming annual ball.

3 Thousand Pounds raised in last 3 months

Posted by Small Steps on March 21, 2012 at 5:25 PM Comments comments (0)

Thank you to all our supporters who have come along to our events recently. Seaham School of Technology kick started the fundraising in February adding £920 from their talent show - well done to Year 11, especially Jade, Aimee and Nathan. Our consett Racenight pulled in £930 with a massive £150 raised from the auction race. Private donations from the local York shopping group brought us £80, Newcastle Airport employee handed us a cheque for £200 and our latest Shopping Fair at the Red Lion Ch-le-St saw us bring in £660. Lets hope the momentum continues and our supporters continue to be there along side us.

We have a Fashion show coming up on May 4th at Red Lion Ch-le-st with the house of Colour leading a spring fashion update with all the latest trends on the catwalk. This is a ticketed event £10 each, to include wine, nibbles and a purple accessory. Contact Jude on 07939029744 to purchase your tickets. Why not make it a girls night out. Tickets purchased in a group of 10 will recieve a 20% discount on the ticket price.

Christmas Shopping Night a hit

Posted by Small Steps on October 22, 2011 at 6:40 PM Comments comments (0)

Thank you all who attended our christmas shopping night, everyone had a great time and many asked when our next one is. The answer to that question is spring time, watch this space for dates. We managed to raise £919 last night so a huge thanks to everyone involved. The raffle draw numbers are below. If you haven't yet claimed your prize, you can pick it up from the Red Lion at Chester-le-Street. Just take along your winning ticket.

1) Framed Hand Impression  0227  Michelle

2) Meal for 2 in Austins   0309   Louise

3) Players Drink Voucher  0265  Mrs J Wilson

4) Players Drink Voucher  0263   Mrs I Laverick

5) Small Print £20 voucher  0158   Edwards

6) Michael Carrick's signed boots  0324  Audrey Oliver

7) Elleah Gift Voucher   0106    J Richardson

8) Hairvoucher    0156    M Hinds

9) Lloyds Bar Meal for 2  0311  Gail Scott

10)Jamie Oliver Splash & gulg set  0008    SpeedWright

11) Truffles  0326   J Hinds

12) Partini Game 0355  Greener

13) Game of Risk 0127   Ava Roberts

14) Crafty Cupcakes  0271   Mrs Oliver

15) Organiser Box 0038  Vince Carrick

16) Make Scents products  0240  Jane Horn

17) Red Lion Carvery   0060   K Lyndsey

18) Ceramic Cooking Set  0046  L Cain

19) Cupcake Bouquet  0362  Milburn

20) Wooden dominoes/soft toy  0389   Mrs Foster

21) Smart cookies  0051  Debra Jennings

22) Candy Tree  0013  Steve Gage

23) Hairaccessories  0251   Karen Wright

24) Pot of Gold Coins   0014  Steve Gage

25) North Coast Candles  0392  K Griffin

26) Toys & Gifts  0114  Maxine Dale

27) Smart Cookies   0294  Andrea Moore

28) Bath Salts  0278   S Irvine

29) Childrens Books  0266   Suzanne Hall

30)Ring  0118  Doreen

31) Doggie Treats  0333  C Parker

32) Just Because pack   0041  Vince Carrick


Rss_feed